Your fingerprints are all over who I am now.
Hello lovely people of Tumblr. As some of you may know, I have Ehlers-Danlos Syndrome, a connective tissue disorder that can affect pretty much anything in the body. For me, currently, it primarily affects my joints, gastrointestinal system, lungs, bladder and heart/autonomic nervous system. EDS is widely unheard of condition, often misdiagnosed and misunderstood, and desperately in need of more awareness and funding for research. Well, EDS UK, the UK Ehlers-Danlos charity, and their development manager, Lara Bloom, have put together a documentary on the condition, which they are very close to completing. In order to finish they need a little more funding, and it would be great if some of you would consider donating. This documentary could be an excellent chance to raise awareness for us.
Here is the link to the fundraising page to donate: http://www.justgiving.com/issueswithmytissues
If you can’t donate, please consider reblogging as it would be massively appreciated and really help get the word out. Thank you so much for taking the time to read this. For those who are interested, the documentary teaser is here: http://www.youtube.com/watch?v=UW-NUZEcCe0
Thank you all again <3
This seems like something so obvious and simple, but admitting my feelings regarding my illness is something I find incredibly hard most of the time. Whilst I repeatedly tell others never to hide their emotions, that it does not make them weak or any other negative to cry, or be scared, or be angry, or whatever else, for whatever reason however seemingly big or small, I rarely let others know how I’m really feeling, particularly when it comes to my illness.